Some ALS awareness information...
30,000 people living with ALS right now
Every 90 minutes someone is diagnosed
and
someone passes away
Average age at diagnosis is 55 (I was 56)
Because ALS causes most voluntary muscles to weaken, atrophy and eventually become paralyzed, it requires a host of equipment for caregivers to move and care for the PALS (person with ALS). Power wheel chair, ceiling lifts, eyegaze communication, remodeling and retrofitting homes, bathrooms etc.
In my case, when God takes me home my wife will donate any equipment purchased to the Iowa ALS Association so the equipment can help others, so donations made on our behalf will continue helping, years after I am gone.
Iowa ALS Association
ALS seems to be common in healthy people and more so among football players and vets returning from service.
Steve Gleason
O.J. Brigance
There are many drug/stem cell trials being conducted but most are a decade or more from approval
ALS Clinical Trials
I am on a protocol that has increased survival time but more work needs to be done to increase/lengthen survival.
Winning the Fight
Even one trial costs roughly $500,000 and unless there is profit potential (as with drugs) no one will contribute. One painless way to help is by using Smile Amazon rather then Amazon...same but smile amazon will make a donation with each purchase.
If you have a favorite charity already you can contribute in this way, if not enter
Winning The Fight as your charity and smile amazon will make a donation with each purchase. Research won't help me but may help future PALS survive longer.
Thanks again each of you for prayers and donations...God bless you friends!