Is it so that paul was misdiagnosed with als and actually does have lyme's disease
He would have to type it out for you or you could talk to his wife - Lori. Long story is that Paul got a Lyme test early on - a syrum test (I believe) - and it came back negative. During his sickness, he developed a terrible bacterial infection called C-diff and ended up having to take other anti-biotics - which ended up making his joint pain, and other symptoms, go away for the most part. They all came back when he got off those drugs....
Fast forward through symptoms and pain coming back...losing ability to use hands and walk, even after the interview we did for OO....and he ends up getting a Western Blot test (which is a very definitive test for Lyme) and it comes back positive. The original syrum tests have false indications from time to time - it's not uncommon.
Back to the antibiotics - it turns out through more research that the antibiotics he was taking from the C-diff were very successful in treating chronic Lyme disease...crazy. That's why he was feeling better when on them.
U of I will not acknowledge that Paul has chronic Lyme because they don't believe it exists (to my knowledge). Paul took antibiotics to see if he could recover and ended up "herxing" (flu-like symptoms) from the antibiotics due to the endotoxins being released from the bacteria being broke open. It's tough for Paul to handle that sickness when there is no promise that he will improve. He is not taking antibiotics anymore....
ALS is tough to diagnose and you cannot fully prove someone even has it....there is no definitive test.
It makes it really tough for me to do the Ice-bucket challenge because who knows how many people like Paul have been diagnosed with ALS when they may not even have ALS. Look online - there are hundreds of stories like Paul's and others who were fortunate to catch it early and recover fully...and 2-3 on OO that came to our site to ask Paul to get tested...
Hope that answers your question.....